Research Updates

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All updates for Hereditary Hemorrhagic Telangiectasia (Osler-Weber-Rendu syndrome)

  • September 28, 2026

    6 materials

    A study compared two lasers for skin treatments in hereditary hemorrhagic telangiectasia, finding one caused less pain and redness.

  • September 24, 2026

    5 materials

    A study found that blood markers in patients with HHT may change during treatment, possibly indicating how well treatments are working (1).

  • September 22, 2026

    16 materials

    A new study plans to evaluate a treatment for severe nosebleeds in HHT patients, considering how individual factors may influence results (Item 3).

  • August 31, 2026

    1 material

    A new study is looking to use liquid biopsies to find genetic changes in brain arteriovenous malformations (bAVMs). This could help with better diagnosis and treatment options for people with HHT.

  • August 28, 2026

    21 materials

    A genetic test confirmed a rare syndrome related to hereditary hemorrhagic telangiectasia, leading to a re-evaluation of family diagnoses (Item 1).

  • August 28, 2026

    1 material

    A new study is being planned to test a treatment called DIAG723 in adults with hereditary hemorrhagic telangiectasia. The study will focus on its safety and early effects.

  • August 28, 2026

    1 material

    The FDA has added a boxed warning for ferric carboxymaltose due to risks of low phosphate levels. This action came after a petition led by Dr. Scott Olitsky from Cure HHT.